publication . Article . 2017

The experience of falls and balance impairment for people with\ud Charcot-Marie-Tooth disease

Ramdharry, Gita M; Thornhill, Anna; Reilly, Mary M; Marsden, Jonathan F;
Open Access English
  • Published: 31 Jul 2017
  • Publisher: Mark Allen Group
  • Country: United Kingdom
Abstract
People with Charcot Marie Tooth disease (CMT) have impairments of balance and may fall more frequently than those without the condition. This qualitative study aimed to explore the experiences of falling and poor balance through focus group interviews. \ud Participants were recruited through local and national meetings of the CMT United Kingdom support group. Three focus groups took place, including 25 adults with CMT in total.\ud Thematic analysis revealed five main themes: frequent falling; cognitive burden of walking; environmental issues; external support; getting off the floor; perception of others. Participants described the physical issues of poor balance...
Subjects
free text keywords: alliedhealth
Related Organizations
Funded by
NIH| training
Project
  • Funder: National Institutes of Health (NIH)
  • Project Code: 1U54NS065712-01
  • Funding stream: NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE
,
RCUK| MRC Centre for Neuromuscular Diseases in Children and Adults
Project
  • Funder: Research Council UK (RCUK)
  • Project Code: G0601943
  • Funding stream: MRC
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