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ZENODO
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ZENODO
Other ORP type . 2020
License: CC BY
Data sources: ZENODO
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Repository of the main European/international efforts to harmonise and integrate cohorts

Authors: Albert Sanchez-Niubó; Teresa Torres;

Repository of the main European/international efforts to harmonise and integrate cohorts

Abstract

The SYNCHROS repository has been created to share all key information about initiatives that harmonised and/or integrated cohort data. The repository contains information obtained from 4 different exercises: The mapping of existing initiatives that harmonised/integrated population, patient and clinical trial cohort studies The mapping of existing cohort studies assessing the impact of new exposures on health The mapping of existing population and patient cohorts using social media and new communication technologies The identification of the main European/ international efforts to harmonise and integrate cohorts The mappings 1 to 3 have been described elsewhere (Deliverable 1.3, 1.4 and 4.2, respectively), hence here we will focus on the main European / international efforts to harmonise and integrate cohorts that have been identified, and subsequently have been included in the repository. This report contains a description of the SYNCHROS repository of main European and international initiatives, and explains how data have been harmonised and integrated across different cohorts, either population, patient or clinical trial data. The document contains the following information: Description of the methodological information on harmonisation and integration collected from the identified initiatives. The state of the repository and some preliminary results of the methodological information found. Limitations and conclusions based on the experience of searching for the methodological information of the different initiatives. The repository is openly accessible at https://repository.synchros.eu/networks

This document was created in the context of the SYNCHROS project. SYNCHROS (SYNergies for Cohorts in Health: integrating the Role of all Stakeholders) is an EU-funded Coordination and Support Action (H2020, ref. no. 825884), aimed at developing a sustainable strategy for the integration and harmonisation of health cohort initiatives and networks across Europe and internationally. Through intensive collaboration with stakeholders (e.g. researchers, funding bodies, coordinators of cohort harmonisation and integration initiatives, policy-makers), SYNCHROS aims to create a strategic agenda for an enhanced international coordination and sustainable recommendations for better collaboration of cohorts globally, towards the development of stratified or personalised medicine.

Keywords

Repository, Harmonisation, Integration, Methods, Methodology, Infrastructures

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  • citations
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    0
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
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