Powered by OpenAIRE graph
Found an issue? Give us feedback
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/ Publikationer från U...arrow_drop_down
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/
versions View all 2 versions
addClaim

This Research product is the result of merged Research products in OpenAIRE.

You have already added 0 works in your ORCID record related to the merged Research product.
addClaim

This Research product is the result of merged Research products in OpenAIRE.

You have already added 0 works in your ORCID record related to the merged Research product.

CARE : Indigenous rights and open data

Authors: Ulfsparre, Sanna Isabel;

CARE : Indigenous rights and open data

Abstract

As academia develops towards open science and increased access to research data and materials, we find ourselves with new possibilities and opportunities to use and reuse research output. Among indigenous people, this development is considered a great progress, as well as a source of tension, as they have worked towards both increased transparency and increased control over application and use of indigenous data and knowledge. In order to bring light to ethical issues regarding indigenous data, the organisation GIDA (Global Indigenous Data Alliance) is presenting the CARE (Collective benefit, Authority to control, Responsibility, Ethics) principles – a suggestion for a principal framework to be used as a complement to the established FAIR (Findable, Accessible, Interoperable, Reusable) principles for research data management. In the framework of CARE, the concept "Indigenous data" include all data connected to indigenous peoples and resources, regardless of level. Indigenous data are not limited to data collected within research contexts. The term include qualitative as well as quantitative data, and all types of data – from personal and cultural data to data concerning indigenous resources and environments. In the article Operationalizing the CARE and FAIR principles for Indigenous data futures, published in Nature (2021), Carroll et al. states that "Earth and space science research data is highly relevant to Indigenous communities". In other words, indigenous data occur in a wider range of research domains than one might generally assume. CARE might lead to increased visibility and dissemination of interdiciplinary research. Among other things it is important that descriptive metadata uphold a high quality in the larger, generalist resources and structures for information organisation. If the CARE principles are to be used, they need to operate in line with other existing frameworks for research ethics. The principles are interesting reading for researchers, regardless of level of implementation, as they provide information about aspects of research data management and use that might be ethically important. In a swedish context, the CARE principles are being processed in relation to our seats of learning and governing institutions. The question of whether, and to what extent, CARE might become guidelines for ethical research practices in Sweden is still open. However, that the CARE principles are on the agenda in itself mean that indigenous issues and the UN resolution UNDRIP are tested and brought to the fore in relation to our ethical framework for open science and open data. I takt med att den akademiska världen utvecklas mot öppen vetenskap och ökad tillgång till forskningsdata och forskningsmaterial får vi nya möjligheter att använda och återanvända de forskningsdata och material som forskningen alstrar. Bland världens urfolk betraktas utvecklingen mot öppen vetenskap som ett stort framsteg, samtidigt som det ger upphov till spänningar. Detta beror på att urfolken arbetar både för ökad öppenhet och transparens kring forskning, och för att få ökad kontroll över att tillämpning och användning av urfolksdata och -kunskap sker på ett etiskt sätt. För att belysa de etiska frågorna i relation till urfolksdata har organisationen GIDA (Global Indigenous Data Alliance) presenterat CARE-principerna (Collective benefit, Authority to control, Responsibility, Ethics) - ett förslag till en principiell ram som kan användas som ett komplement till de etablerade FAIR-principerna (Findable, Accessible, Interoperable, Reusable) för hantering av forskningsdata. Inom ramen för CARE-principerna används begreppet "Indigenous data" (urfolksdata) på ett sätt som omfattar all data som påverkar urfolk, oavsett nivå. Data behöver inte vara insamlade i forskningssyfte, men forskningsdata ingår i begreppet. Termen innefattar kvalitativ och kvantitativa data, och alla typer av data – från kulturella data och persondata till data som rör urfolkens resurser och miljöer. I artikeln Operationalizing the CARE and FAIR principles for Indigenous data futures, som publicerades i Nature (2021), konstaterar Carroll et al. att "Earth and space science research data is highly relevant to Indigenous communities". Urfolksdata kan med andra ord förekomma inom en större bredd av forskningsområden än vad man kanske i vanliga fall tänker sig. CARE kan leda till att tvärvetenskaplig forskning om urfolk får ökad synlighet och att forskare inom området får fler möjligheter att sprida sina forskningsresultat. För att detta ska vara möjligt krävs bland annat beskrivande metadata av hög kvalité i de stora, generella resurserna och strukturerna för informationsorganisation. Eventuell användning av CARE måste fungera tillsammans med befintliga forskningsetiska ramverk. Principerna är intressant läsning för forskare, oavsett grad av implementering, eftersom de ger information om olika aspekter av forskningsdataprocessen och -användningen som kan vara etiskt viktiga. I ett svenskt sammanhang processas CARE-principerna nu i förhållande till våra lärosäten och styrande institutioner. Frågan om, och i vilken utsträckning, CARE kan bli riktlinjer för etisk forskning i Sverige står fortfarande öppen. Men att CARE finns på agendan innebär i sig att urfolksfrågor och FN-resolutionen UNDRIP testas och lyfts fram i relation till våra forskningsetiska ramverk för öppen vetenskap och öppna data. The feature is available both in English and in Swedish. Originally published on the Umeå university library webpage. The text in the feature has a CC BY 4.0 license. The images are not included in the licence.

Country
Sweden
Related Organizations
Keywords

Ethics, FAIR principles, Research data alliance, research ethics, UN, open data, library and information science, LIS, Etik, research data, indigenous data, CARE principles, sami people, open science, sami studies, UNDRIP, GIDA, indigenous peoples

  • BIP!
    Impact byBIP!
    citations
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    0
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
  • citations
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    0
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
    Powered byBIP!BIP!
Powered by OpenAIRE graph
Found an issue? Give us feedback
citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
moresidebar

Do the share buttons not appear? Please make sure, any blocking addon is disabled, and then reload the page.